Associate Director, Data Partnerships, Rare Disease

About the role

This role builds and manages rare disease data partnerships that support a US commercial organisation, covering brand needs, customer engagement, patient access and field execution. It oversees compliance, quality and value of external data assets.

What you will do

• Implement the rare disease data partnership strategy, identifying critical data needs across brands and use cases
• Establish and strengthen relationships with external data providers, platforms and vendors
• Apply knowledge of rare disease data sources and limitations to guide partnership decisions
• Monitor quality, security, privacy and compliance standards for external data sources
• Work with vendors and internal teams to resolve data quality issues and communicate changes
• Track partnership spend and performance, reporting metrics and governance to senior leadership

What they look for

• Depth in healthcare and rare disease data, including work with or for a data vendor
• Experience implementing data partnership strategy and managing vendor relationships
• Understanding of rare disease data sources, patient identification challenges and fit-for-purpose use
• Knowledge of data governance, sharing agreements and regulatory requirements
• Ability to collaborate across analytics, field enablement, access and patient services teams